A la découverte du métier de biographe hopitalier avec Christelle

 

Christelle Cuinet, fondatrice de l’association Traces de Vies (à gauche)


Il y a quelques jours, j’ai découvert, au travers de l’émission, Esprit d’Initiative animée par Emmanuel Moreau sur France Inter, l’association Traces de Vies.

J’ai tout de suite souhaité en savoir plus et j’ai contacté Christelle Cuinet, 50 ans, la fondatrice de l’association et accompagnant biographe de profession.

Christelle a donc eu l’extrême gentillesse de répondre à mes questions malgré toutes les sollicitations qu’elle pouvait recevoir notamment depuis son passage à l’émission.

Une urgence et une nécessité de dire les choses

Créée en 2011, Traces de Vies accompagne par l’écriture les personnes malades ou en fin de vie. Elle recueille les récits de vie, les transcrit fidèlement et les transmet aux familles. Avec les enfants, c’est une fiction illustrée qui voit le jour.

Après avoir consacré 23 ans à l’enseignement des lettres en lycée, Christelle a souhaité mettre ses compétences d’écoute et d’écriture au service des plus fragiles suite à la découverte des soins palliatifs en 2003 lorsqu’elle a accompagné une amie en fin de vie. Elle a alors ressenti toute l’urgence de dire les choses avant de partir. Et la nécessité de n’être ni soignant ni trop proche afin de recueillir les mots.

Une association qui existe principalement grâce aux dons et aux bénévoles

Elle créé alors l’association pour recueillir des fonds nécessaires aux accompagnements qui sont offerts aux familles. En effet, ce service, accessible à tous, a néanmoins un coût important et ne peut exister que grâce à des dons et au soutien de partenaires et mécènes tels que des fondations, entreprises locales et nationales, donateurs et adhérents.

A ce jour, hormis le pilier de l’association, composé d’un président, d’un trésorier et d’un secrétaire, il y a trois salariées :

  • Céline s’occupe des partenariats et de la recherche de financements ;
  • Marine, nouvellement embauchée, est biographe à temps partiel ;
  • Christelle, la fondatrice de l’association, est elle aussi biographe.

Outre les personnes citées ci dessus, une vingtaine de bénévoles est toujours prête à organiser des actions afin de trouver des fonds et l’association est organisée en commissions de travail sur des thématiques bien précises telles que les partenariats, la formation, la communication, l’éthique.

Un métier qui peine à être reconnu 

L’association Traces de Vies n’a eu aucune difficulté à être créée, la démarche étant très simple. En revanche, il a fallu convaincre. En effet, le métier l’est un peu plus qu’il y a neuf ans lorsque l’association a vu le jour mais n’est toujours pas reconnu. La volonté de la gratuité n’était par exemple pas comprise. Christelle s’est trouvée confrontée à quelques difficultés où on lui répondait d’être bénévole ou de faire payer les malades. Il a fallu alors s’armer de patience et de ténacité pour faire grandir l’association et trouver des fonds.

Traces de Vies est basée en région Bourgogne Franche-Comté, à Dole plus précisément. Elle intervient sur une grande partie du territoire, en milieu hospitalier mais aussi à domicile.

Une portée grandissante

L’association est lauréate des trophées de la Fondation Cognac-Jay et la remise des prix aura lieu en février 2020 à Paris.

Un documentaire sera diffusé jeudi 14 novembre 2019 à 20h30 sur LCP, A la mort à la vie, suivi d’un débat auquel Christelle participe.

Et un livre sortira au printemps prochain, relatant l’expérience de Christelle, chez Michel Lafon.

«Si tu veux que tes rêves se réalisent, ne dors pas »

Christelle a choisi de terminer son interview en me citant un proverbe chinois et en expliquant sa portée : « Si tu veux que tes rêves se réalisent, ne dors pas ».

Sans aller dans l’excès, il résume assez bien ce que représente aller au bout de ses rêves. Y croire, oser, ouvrir les portes, même quand elles sont fermées à double tour, persévérer, garder confiance. Faire vivre une idée n’est pas de tout repos, cela demande de l’engagement, une forme de foi en soi, du courage, mais ça vaut la peine de voir son idée balbutier, faire ses premiers pas, grandir, s’épanouir pour finalement trouver sa place et même s’émanciper.

Pour découvrir le travail de l’association Traces de Vies, vous pouvez faire un tour :

Ou lui envoyer directement un  courriel

Un grand merci à Christelle et toute son équipe pour toute leur délicatesse, la confiance accordée et d’avoir eu la gentillesse de répondre à mes questions.

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